For several years, the Little family has been fundraising to hopefully eradicate the rare disease, Cystinosis, that has affected their daughter Olivia.
From the time she was little girl, Olivia’s parents, Erin and Chad, have worked tirelessly to raise funds in search of a cure with the entire community and corporate sponsors getting on board.
Liv-A-Little was started in 2013 by Olivia’s family, when they refused to give up when it was discovered their little toddler was battling the rare disease and they formed the Liv-A-Little Foundation, to raise awareness and funds for research into the rare metabolic disease that affects only about 2,000 people worldwide, and so the many years of fundraising efforts began.
Through the popular August ‘Paint the Town Purple‘, where purple bows were purchased and adorned businesses and homes throughout the community, to their annual Golf Tournament, they have raised hundreds of thousands of dollars for research into the rare disease.
Close to home, on Friday, the family through its Liv-a-Little Foundation, donated $15,000 to the Saugeen Memorial Hospital Foundation toward dialysis equipment. “Olivia has used this equipment from the time she was little,” said Erin Little, “so we wanted to donate back as there is always a need to update the equipment.”
Today, Olivia is a grade eight student about to enter high school but … the search for the cure still goes on.
